FAQ's

What is scleroderma?

Scleroderma is a rare autoimmune disease that causes the skin and internal organs to become hard and thickened. It can affect both children and adults, and its severity varies.

Who is the Scleroderma Kids Alliance for?

Our organization is dedicated to supporting children diagnosed with scleroderma and their families, providing resources, community connections, and joyful experiences.

How does Scleroderma Kids Alliance support families?

We offer support through events, camps, education resources, and a community network that helps families connect, share experiences, and find comfort.

Is my child eligible for support if they are diagnosed with scleroderma?

Yes. We provide support and resources to children diagnosed with scleroderma and their families, regardless of disease severity or stage.

How can I get involved?

You can volunteer, donate, join our board, or participate in our events. Visit our volunteer page to view current opportunities where we will guide you on how you can contribute your time and talents to support children with scleroderma and their families. We welcome volunteers who want to help make a difference! You can get involved by helping with events, fundraising, outreach, or administrative support.

How can I connect with other families?

Join our community network through our events or support groups. Contact us at [email protected].

Can I donate to Scleroderma Kids Alliance?

Absolutely. Your donations help us fund programs, events, and resources for affected families. Visit our donation page for more information or donate here

How can I double (or triple) my donation?

Give Through Your Workplace (Benevity)

Many companies offer employee giving and matching programs through Benevity. Scleroderma Kids Alliance is now listed on Benevity, which means you may be able to:
• Donate directly through your employer
• Have your donation matched

Search for Scleroderma Kids Alliance on your company’s Benevity portal to give today!

Is my donation tax-deductible?

Yes, in most countries, donations to registered non-profit organizations are tax-deductible. Please consult with your local tax advisor.

Can I donate monthly?

Absolutely! Monthly giving helps us plan better and provide continuous support. Please email [email protected] if you would like to donate monthly.

How do I know my donation makes a difference?

Your donation directly supports our programs, events, and resources that help children with scleroderma and their families. It enables us to organize camps, provide educational materials, and foster a supportive community. We regularly share updates and stories of how donations are making an impact, and you can also contact us to see the specific ways your contribution is helping. Every gift, big or small, brings us closer to our goal of providing hope and support to those affected by scleroderma.

Is my personal and payment information secure?

Yes! Your payment information never gets sent to Scleroderma Kids Alliance. Our website is secure, but we use third-party payment gateways such as PayPal and Stripe to be sure your information never even reaches our organization.

Can I partner with your charity as a business?

Definitely! We welcome partnerships with companies and community groups. Contact us at [email protected].

Is Scleroderma Kids Alliance affiliated with the National Scleroderma Foundation?

No.
Scleroderma Kids Alliance (SKA) is an independent 501(c)(3) nonprofit organization and is not a part of the National Scleroderma Foundation.

SKA operates as a standalone organization with a support-focused mission specifically for children with scleroderma and their families. We do not conduct research or formal education programming and do not replace or compete with the work of the National Scleroderma Foundation. Instead, SKA aims to complement existing organizations by addressing the unique community, emotional, and connection needs of pediatric patients and their caregivers.

FAQ's

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