Karen Ceresnak

Karen Ceresnak is the founder of Scleroderma Kids Alliance, a nonprofit dedicated to bringing hope, connection, and support to children living with scleroderma and their families. Motivated by her own family’s journey with pediatric scleroderma, Karen recognized the profound need for a community where families could find understanding, resources, and encouragement. She created Scleroderma Kids Alliance to ensure that no child or parent feels alone in navigating this rare diagnosis.

Karen is also a Pediatric ICU nurse, a role that has shaped her deep compassion for children and families facing medical challenges. Her clinical experience gives her a unique understanding of the emotional and practical needs of families coping with rare conditions and informs the supportive, family-centered approach of the organization.

Karen brings years of leadership, community-building, and advocacy experience to the organization. Known for her compassion, determination, and ability to unite people around meaningful causes, she is committed to creating programs that empower kids, support families, and build a strong, resilient community.

Karen lives in California with her husband and 3 daughters and is dedicated to expanding awareness, resources, and opportunities for children affected by scleroderma nationwide.