Pamela Pour

Pamela’s daughter, Grace, was diagnosed with systemic scleroderma and Interstitial Lung Disease in 2015.  After a year of rigorous treatment, Pamela found inspiration in a conversation with a friend and decided that she would take this devastating experience and help other families with children diagnosed with scleroderma.   Pamela joined the board of the Scleroderma Foundation Michigan Chapter (2016-2021).  Pamela and Grace became Patient Educators, teaching 2nd-year medical students at various universities about scleroderma (2016-present). Additionally, Pamela participates in multiple Childhood Arthritis and Rheumatic Research Alliance (CARRA) pediatric scleroderma research workgroups (2017- present). Pamela is the Leader for the Parents of Kids and Teens with Scleroderma Support Group (2016-present).   Along with her daughter, Pamela is a member of the Cure Crew for the Scleroderma Research Foundation (SRF), raising research dollars and educating people about scleroderma (2024 – present). She has also hosted many scleroderma awareness events and fundraisers, and is involved in advocacy for scleroderma patients. Her dream for 10 years has been to create a camp for children diagnosed with scleroderma, as well as other supportive and social engagement opportunities for the young patients.